â€œA purposeful, planned process that addresses the medical, psychosocial and education/vocational needs of adolescents and young adults with chronic physical and medical conditions as they move from child-centred to adult-oriented health care systemsâ€
Taken from a position paper of the Society for Adolescent Medicine. J Adol Health 1993:14; 570-6
Research and evidence from numerous studies and focus groups on the experience of transition from the young personâ€™s perspective often describes it as â€˜falling off a cliffâ€™. Young People want to be listened to and understood, to be taken seriously, to have a well-planned service, to have access to flexible services, to have choice, information and advice and to have continuity of care.
For some other young people and their families with complex health needs itâ€™s the desire to have an identified adult clinician or GP that co-ordinates care and that when healthcare is needed it can be accessed appropriately and swiftly.
Within NHS England there is a National Clinical Director for children, young people and the transition to adulthood.
Nationally the clear objectives for Transition are:
- To share learning from existing good practice â€“ successes, challenges and barriers to implementing clinically and patient designed Transition models
- To define the critical elements of an effective Transition plan
- Using the above, develop a Generic Service Specification as a commissioning template, onto which all specialised and complex services can be added, with separate consideration of CAMHS, and young people with SEN and Learning Disability, and LTCâ€™s
- Start to consider measurable outcome indicators against which successful Transition plans can be commissioned and monitored
- Work with CRGâ€™s, SCNâ€™s and ATâ€™s to identify partners, LA & others â€“ provide the â€œscaffoldingâ€ not the detail of â€œhowâ€
With the Children and Families Bill, The SEND Reform, Personal Health Budgets and the imminent adoption of Education Health and Care plans for ages 0-25 years it is important to recognise the role of transition in all of this.
There will be many teams or specialities within our network region that provides excellent transition experiences for young people â€“ we want to find out about these and share this with others.
If you would like to work on developing a network wide strategy for transition please register your interest by contacting firstname.lastname@example.org
Southamptonâ€™s Ready Steady Go Programme for Transition
Transition Information Network
Together for Short Lives
STEPP Research Practice Prompts
STEPP Research Briefing
Involve North East
CQC June 2014 – From the pond into the sea